Parkinson’s disease is a disease in a group of conditions called movement disorders — disorders that result from a loss of the brain’s control on voluntary movements. In the brain of people with Parkinson’s (PWP), cells that produce this essential substance die earlier than normal.

Parkinson’s is a progressive neurological condition with these main symptoms:

  • Tremor – which usually begins in one hand or arm and is more likely to occur when the affected part of the body is at rest and decrease when it is being used. Stress can make the tremor more noticeable. However the presence of tremor does not necessarily mean a that person has Parkinson’s, as there are several other types and causes of tremor. Also, although most people associate Parkinson’s with tremor, up to 30% of people with Parkinson’s do not have this symptom.
  • Slowness of movement (bradykinesia) and stiffness of muscles (rigidity) – movements can become difficult to initiate, take longer to perform and lack coordination. People with Parkinson’s often have problems with turning round, getting out of a chair, rolling over in bed, stooped posture, and making fine finger movements, facial expressions and body language.
Although a whole group of conditions are known as parkinsonism, the one that most people know is called idiopathic PD, a Greek word that means arising spontaneously from an unknown cause. As the term suggests, the jury is still out as to the underlying cause (though theories do exist).

Go into a room filled with 50 people with Parkinson’s (PWP) and ask how they first suspected they had PD. You’re likely to hear 50 different stories. Take ten of those people who were diagnosed at approximately the same time and you’re likely to see varying signs of PD progression — from almost no progression to more rapid onset of symptoms. Similarly, you’re likely to experience a variety of attitudes and outlooks from the individuals dealing with their PD.

When you’re diagnosed with PD, you set out on a unique journey — one where your outlook, lifestyle changes, and medical treatment can be key directional maneuvers along the way. In truth, this disease is one that you can live with, surrender to, or fight with everything you’ve got. The road veers and curves differently for each person. Some people may choose one path for managing symptoms, and some people choose another. Sometimes the disease itself sets
the course. The bottom line? No clear roadmaps are available. But one fact is certain: Understanding the chronic and progressive nature of PD can take you a long way toward effectively managing your symptoms and living a full life.

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