Being diagnosed with a chronic progressive illness like Parkinson’s disease (PD) changes your life forever. Don’t give up or give in to the disease! Today is a very hopeful time for people with PD. I hope these thoughts and observations will help you.

  • Keep your sense of humor! Having trouble walking, being unable to talk as loudly as you want, or giving up driving are not particularly funny. However, try to put a humorous spin on everyday observations and situations. For example, if you use a wheelchair, you might look at it this way: You always have a place to sit and a pair of shoes lasts you 20 years. Remember, laughter is a great stress reducer.
  • Surround yourself with caring, loving, and nurturing family members, friends, neighbors, and co-workers. Give yourself permission to eliminate people and activities that drain your energy. Be honest with your family and friends if you’re having a bad day. Explain that you may feel terrible in the morning but fine in the afternoon. Don’t expect people to know what you are feeling unless you tell them.
  • Tell people about your illness. At any age, it can be difficult to share your feelings with your friends. And, it can be especially difficult if you’re diagnosed with PD when you’re young. Your friends may not know what PD is and may not know what to say or do—so tell them. Also, tell your hair stylist, dentist, and customer service people (as appropriate) that you may shake, lose your balance, move slowly, or have difficulties speaking because of PD. Ask for their help when you need it. People feel good when they can do something for someone else. You might also want to keep a few informational brochures in your purse or wallet because you never know who might be interested in learning more about Parkinson’s disease.

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